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Living with Brochiectasis

Hi, twenty plus years ago I had been dealing with a horrible cough and sought the usual treatments – going to interns, pulmonologist, sinus doctors, allergist for years without success. I was teaching resource as a Special Education teacher and had a real difficult time with infections.

I finally made an appointment with a diagnostic clinic in another state and was diagnosed with a rare pneumonia “Eosinophilic.” I was on high doses of steroids for a few years and everything seemed to be alright.

A few years ago I started having real bad bronchitis 5 or 6 times a year.

My pulmonologist usually gives me steroids and/or antibiotics to get me through these flare ups. I do have other medical conditions: neuropathy, panic disorders, high blood pressure, severe allergies and insomnia.

My husband is in late stage COPD and has had several hospital stays with complications in the past 3 months. He is on oxygen therapy at night and is doing better at this time.

We are fairly optimistic and find little joys each day and will not give up the things we love to do, like travel for as long as we can.

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Comments

  • Erin Rush moderator
    2 years ago

    Hello Carollou70! Than you for taking the time to share a part of your story with us! While I am sorry that you have to deal with a fair amount of medical conditions, I am glad that you and your physician are proactive about treating them as thoroughly as possible. I hope the steroid and antibiotic treatments keep working well for you. I wanted to let you know that at least a few of our members have had Brochietasis, so you are not alone in dealing with that diagnosis!

    I think it’s great that you and your husband are able to find the good in each and every day and that you are able to keep traveling! I hope you are able to enjoy those trips for a long time to come. I thought you might appreciate this piece by one of our contributors about the importance of doing what you love (specifically, traveling) for as long as you are willing and able — https://copd.net/caregiver/traveling-is-about-the-memories/. Again, I hope you and your husband continue finding the joy in each day and making memories in your travels!

    Thank you again for sharing and may this season be a healthy one for both of you, with no flares or relapses!

    Best, Erin, COPD.net Team Member.

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