Invasive Aspergillosis

By miracle1

1 min read

Not a good week... I have been on oxygen 24/7 for 17 years now with both COPD and Asthma and emphysema.

I am end stage and have been for some time... I have a 16% total lung capacity. After having my bronchoscopy done a few weeks ago, they discover that my lungs are full of mold. Invasive Aspergillosis - very serious because of my emphysema. The medicine cost me well over $500 - my portion of $5400 - they don't even know if it will work. I will be tested again in 90 days to find out.

I have always been a very positive person and push myself every day to get dressed and showered and cook meals and help with the dishes instead of giving in. This has knocked me for a loop. It's getting harder and harder for me, plus my eyesight seems to be affected by the medication and I only hope and pray that it is temporary. Just a little down today... but wanted to share about this disease. I know that my faith will see me through. God Bless.

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Leon Lebowitz, RRT Member
Hi Nora and thanks so much for sharing your experiences with our online community. You've certainly been given your share of medical conditions to cope with and we appreciate how emotionally challenging and expensive this all can be. It's commendable and admirable that you are staying positive! Maintaining a positive attitude can go a long way when dealing with your health. Also, by staying active and getting through each day is the best way to stay on top of this. If there is anything we can assist you with, please let me or any other moderator/team member know. We are here to provide support, share scientific information, and to lend an understanding ear. Wishing you the best, Leon (site moderator)
1. miracle1 Member
 To Leon and Erin...Thank you so much for your kind words and encouragement..You truly made a difference on a difficult day...So grateful for this site..God Bless your continued good works...nora
Erin Rush Community Admin
Thank you very much for sharing, Nora. I have a dear friend that was diagnosed with mold in her lungs and I had no idea such a thing was even possible before her diagnosis. So I thank you for sharing and making us aware of the condition. I think it's ok and very normal to feel down when faced with yet another diagnosis. And I think it' healthy that you are letting those feelings out here. It sounds like you have managed to maintain a great attitude and a good quality of life through the ups and downs of COPD/asthma/emphysema. And I bet you will find a way to continue your life even with this latest diagnosis. That said, you take all the time you need to rest and mentally process this new diagnosis. Since you are a person of faith, I know you already know you are not facing this alone. And we here at <a href='https://copd.net' target='_blank'>COPD.net</a> are also here for you as well. Please come here anytime you need to vent or get some extra support. Thank you again for sharing with us and I hope the medications work well, with a minimum of side effects. Have a good night! Best, Erin, <a href='https://copd.net' target='_blank'>COPD.net</a> Team Member.