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Early 30’s…..

Well, not sure where to begin but I’m only 34 & have been diagnosed with emphysema, lung scarring (31% damage) and a small nodule approximately 6 months ago. Assuming stage II based on this website, however, this was never discussed with my doctor. I am over weight and need to loose about another 40 lbs but it is so hard. I lift weights, eat well, walk on a daily basis (only up to .70 miles as my doctor does not want me to use my fast acting inhaler every day) and try to do Yoga 3 times per week.

I grew up with my father smoking, however, never did in the house and hardly around me. I did smoke during my last two years of high school and a couple of years after but no more than a pack per week (at the most).

I haven’t found much information on people my age with this but hoping to learn more as time goes on. Pulmonary function tests every 6 months along with yearly CT scans to monitor the nodule. Hoping my powdered inhaler maintains my condition as I am only 2% away from needing supplemental oxygen.

Any advice, tips would be appreciated.

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Comments

  • Barbara Moore moderator
    12 months ago

    Hi Becky, Have you asked your doctor about Respiratory Rehab? It is hard at any age to hear such a diagnosis but you seem to be much younger than most, so rehab could help you twice as much
    Barbara Moore (site moderator)

  • Leon Lebowitz, BA, RRT moderator
    4 years ago

    Welcome Becky. Jenn has pointed you in the right direction with links to some very helpful reading material right here on COPD.net. The material focuses on those issues concerning your condition that you were able to share with us.

    Even though you ‘think’ you have stage II COPD ‘based on this website’, we cannot stress enough the importance of letting your private physician specifically advise you as to the level of severity of your COPD. You owe it to yourself to actually discuss it with him/her.

    If oxygen therapy is in your future (you mentioned that your saturation level is but 2% shy of requiring oxygen), you may find it easier to breathe should you reach that point. You may find this reading material of interest as it relates to the use of oxygen for COPD patients: https://copd.net/?s=oxygen+therapy&submit=Go

    Please feel free to come here any time and bring us up to date on your condition and progress. You will find this to be a caring and supportive community.
    Good luck to you!
    Leon (site moderator)

  • Jenn Patel
    4 years ago

    Hi Becky-

    Thanks so much for posting here, and we’re sorry for everything you’re dealing with. You sound like an incredibly strong person with a fantastic attitude! We’re so glad you found our community.

    While you may get more feedback on personal experience from the community, I thought some articles might be useful. Feel free to use whatever is helpful, and also to discuss them with your doctor and/or specialists if that would help.

    First, I thought this page about Pulmonary Rehab might be of interest: https://copd.net/living-with-copd/pulmonary-rehab/. You may want to ask your doctor about this option.

    Second, I thought this article on breathing strategies might be useful, if you don’t already make use of them: https://copd.net/living-with-copd/pulmonary-rehab/breathing-strategies/.

    Additionally, I think you might appreciate our writer Derek’s story: https://copd.net/stories/copd-makes-things-harder-life-fun/. Like you, he has an upbeat attitude and has found ways to stay very productive. You may like his story about living a full life with COPD.

    Please feel free to come here ANY time with questions, to share how you’re doing, or to get some support – we welcome you and are appreciative that you decided to join us here at COPD.net!

    Best,

    Jenn (Community Manager, COPD.net)

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