Daliresp

By lollipoplady

1 min read

I started Daliresp for my stage 3 COPD and couldn’t continue after a week of severe issues.

Daliresp for COPD treatment

Daliresp side effects

My collarbone hurt, then it radiated into my neck, jaw and face. 168 beats per minute for hours. Horrible experience. Doctor had me stop. My question to anyone who has taken this medicine: did you encounter health issues after stopping? I have not been the same. Been 20 days since I stopped. I feel like I have bad case of flu constantly - tight chest, shallow breathing, fatigued beyond anything I ever encountered.

Am I the only one having these issues?

I tried to research lingering effects from it but there’s nothing out there. If you have these same issues, please let me know how to get over them. Doctors are stumped, thinking I’m crazy I guess. Thank you.

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Leon Lebowitz, RRT Member
Hi Lollipoplady, and thanks for sharing your story with the community. While I'm hopeful other community members will respond with their own anecdotal experiences using this medication (Daliresp), I thought you might gain some additional insight from this article which focuses on the medication: <a href="https://copd.net/daliresp" target="_blank">https://copd.net/daliresp</a>. I do hope you find it to be helpful. Wishing you well, Leon (site moderator)
lsankrom Member
My doctor wants to put me on the lung transplant list. I don’t have caregivers or the money. I’m choosing to take low dose steroids everyday and hope for the best. The very suggestion of it gave me panic attacks! I’m stage 4, but still have a lot of good days.
1. johnmarshall Community Admin
 Thank you for sharing. We're thinking of you during these challenging times. So happy to hear that you still have a lot of good days 😀 Wishing you the best! - John M. (COPD.net Team)
2. Leon Lebowitz, RRT Member
 Hi lsankrom, and thanks for your post. It's understandable the way you feel after being advised of the potential for a lung transplant. I will piggyback on to what my colleague, John, has said (below), it's good that you feel you still have a lot of good days left. A positive attitude (like yours), can go a long way towards managing this condition. Please know you are always welcome here! Wishing you well, Leon (site moderator)
poppopron Member
I had a bad experience with Daliresp also. After I stopped it, took about two weeks to get back to "normal". No recurring issues. That stuff is bad news.
1. lollipoplady Member
 Took me 2 weeks or more to get back to my normal COPD issues. If a body can tolerate the side effects it’s suppose to help breathing.
2. Leon Lebowitz, RRT Member
 Hi again, Lollipoplady, and thanks for chiming in here as well. It sounds like you're saying you didn't have a favorable response to this medication. It sounds like you are now back to what is considered to be normal for your condition. We appreciate your feedback in this forum about Daliresp. How are you managing your condition currently? Is there anything further you can share with the community? Wishing you well, Leon (site moderator)
hite1955 Member
I also have COPD, Stage III, and NEVER Tried DALIRESP, NEVER HEARD of this MEDICATION Before. What TYPE is it? INHALER PILL CAPSULE INJECTION and / or ETC <inline-mention user-id="2471424" username="lollipoplady"/>
1. lollipoplady Member
 I too never heard of it until Pulmonary suggested I try. It’s pill form. I couldn’t tolerate it.
2. Leon Lebowitz, RRT Member
 Hi Lollipoplady and thanks for you acknowledgment of HITE1955's comment, above. All the best, Leon (site moderator)
beverlydemarco Member
HI ,THIS IS A POST TO LET YOU KNOW I HAD TO STOP TAKING DALIRESP, I LOST TOO MUCH WEIGHT AND THE SIDE EFFECTS ON THIS MEDICINE WAS TOO MUCH FOR MEM, IT DID HELP WITH MY BREATHING BUT I LOST MY APPETITE AND WAS VERY BLOATED AND DEPRESSED ON THIS MEDICINE. I AM NOW TAKING (BREO) FOR EXTRA HELP WITH BREATHING AND HAVE HOME HEALTH CARE THREE DAYS A WEEK TO HELP WITH NUTRITION AND EXERCISE. STILL TAKING ONE DAY AT A TIME.
1. Leon Lebowitz, RRT Member
 Hi again, Lollipoplady - thanks for sharing the experience you had using this medication, Daliresp. We appreciate your input. Warmly, Leon (site moderator)
2. Leon Lebowitz, RRT Member
 Hi again, Beverly, and thanks for bringing us up-to-date on your use of this medication. Glad to hear you're doing better using Breo AND that you have home health care helping to provide your care at home. So good to hear back from you. We appreciate your input. All the best, Leon (site moderator)