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Cancer Twice in 4yrs. Went to Lungs and Diagnosis is COPD…..

my story may be a little different than most or some….i am confused with my diagnosis..i have had cancer twice in 4yrs. mine started out as thymus cancer or a tumor on the thyroid. i had it removed on June 2011 and it was deemed cancerous…….after 65 radiation treatments and 13 chemo treatments in 4yrs. later the radiation damaged my lungs which i was warned would more than likely happen……..so now as of 6weeks just past i became short of breath……..went to a pulmonologist he started me on anoro, a powered breath inhaler it is new on the market so he started me on it and bingo he is treating me as having COPD…….i have been through hell so COPD sounds like a walk in the park considering what i have been through in 4yrs…… but i am still devastated with this shortness of breath because it is very scary when you are inhaling and purse-lip breathing to get your heart rate down and get your breath back……

it has changed my life a 360 degree turn around……just that fact i cannot do things like wash my car or do work around the house or take a long walk with my dog, all these things i took for granted……it is amazing or unreal how people’s lives can change in a second…..i am still in awe of it. i was hospitalized and told to use oxygen when i walk or go on long trips…..i joined this site to hear some of the stories that some of you are going through and maybe i can get some insight on this illness ……..i think if i had cancer twice i should be able to adapt to this illness. the shortness of breath has really scared me…….maybe it is like a phobia. i lost my sister 4 months ago she had a mild heart condition and could not get her breath and by the time she got to the hospital she was in a coma……..she never regained conscious or enough brain activity. we lost her 8 days later it is still devastating and i am still numb behind it……..my sister was a twin and they lived together. she is also numb. i just got diagnosis with this and i am reluctant to tell her about my condition. i do not want to worry her especially with a breathing problem i do not think she can or could stand it…..i know it is wrong for me not to tell. i will eventually tell her but i am just in a cloud right now………

well that is my life in the last 4yrs. it has been a living hell to some but i am grateful to have lived through 4yrs of treatment. god delivered me twice, maybe the third time will be a charm with COPD……..i thought cancer was scary, i don’t know, as they say, pick your poison. i am really scared with this breathing problem…….hope to hear from a lot of people who are going through this. i need all the encouragement or inspiration i can, i am glad to hear from all the copd.net site members, god bless, to all thanks,….CAL..

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Comments

  • Barbara Moore moderator
    9 months ago

    Hi Cal,
    You have an incredible story and I hope in some small way we can help to make your journey a little easier.
    Barbara Moore (Site Moderator)

  • senta
    4 years ago

    thatsounds just like me now i am going to cyber knife i hope that helpd my cancer i had cancer 4 times

  • Leon Lebowitz, BA, RRT moderator
    4 years ago

    Hi Cal and welcome to COPD.net. Your experiences are certainly challenging but we’re glad that you found this site.
    Please feel free to check in regularly as you see fit. We will be more than happy to listen and provide whatever support and encouragement we are able to.
    Please stay in touch and keep us informed as to your progress.
    Regards,
    Leon (site moderator)

  • Jenn Patel
    4 years ago

    Hi Cal-

    Thank you SO much for sharing your story. You are certainly in the right place, as there are many people here who understand the exact feelings you are having.

    I am so sorry about the recent loss of your sister. Please do feel free to come here any time you need support or have questions for us. We are happy to help in any way we can. You are not alone!

    I thought this page on “COPD Basics” might be a good place to start getting more info, if you’re interested: https://copd.net/basics/

    Additionally, has your doctor spoken with you about pulmonary rehab? If you’d like to know more, that would definitely be the person to speak to, and in the meantime, here are two articles on the topic: https://copd.net/answers/expert-answers-pulmonary-rehabilitation/ and https://copd.net/living-with-copd/pulmonary-rehab/.

    I truly hope this is helpful. Like I said, please do feel free to come here ANY time! We are here to support you!

    Best,

    Jenn (Community Manager, COPD.net)

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