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Video: COPD Journey and Support

We asked our community- “Who has helped you most in your journey with COPD?”- and we had to share these results! Some shared family members and friends, whereas others shared doctors and online support groups. No matter who supports you most in your journey, we wanted to take a moment to thank you all for being a part of our community at COPD.net!

Comments

  • luvmylife1948
    10 months ago

    I have to say that this site is so good and supportive and so glad I found this site as I don’t have good support from my GP. Possibly because she is more focused on my HIGH BLOOD PRESSURE (which I wish there was a group for as I need support here more so.)
    My COPD is on the back burner for now as my high blood pressure is critical. Been told 3 days ago I am at the 25% mark for having a stroke and heart attack within the next 10yrs. It is scary stuff to have a diagnosis that will change one’s life. But for now glad I have this site because I identify with other people posting and I don’t feel so isolated. It is also a learning curve on this site so may it continue to go from strength to strength. thank |You!

  • Leon Lebowitz, BA, RRT moderator
    10 months ago

    Hi luvmylife1948 and thanks for updating us on your current situation. We’re so glad to hear you find our site to be so helpful and supportive – please know that you are always welcome here. As for now, it does sound like you need to bring your hypertension more under control. There are known conditions that can coexist with COPD and high blood pressure can be one of them. We wish you luck in managing this with your physician and look forward to your continued participation here in our online community. All the best, Leon (site moderator)

  • lovinggrandma
    10 months ago

    I have to say my pulmonologist was very concerned for me when he told me I was in stage 4 copd with a 30% lung function. When I freaked out, he very patiently put his hand on my arm and said. “Angie, stage 4 is not like the cancer stages (which is exactly what I thought). Yours is severe, but we will work together thru this. I will be there for you. He was very compassionate. My daughter is a RN, so she has helped me tremendously. My boyfriend is still with me, so that says allot. He knows when I don’t feel that well and does what he can. But really, this copd site has probably helped the most bc I can look things up if I need an answer, and who would you go to for help other than ppl and counselors who have gone through the same predicaments? God bless everyone who takes their time in helping others!

  • Leon Lebowitz, BA, RRT moderator
    10 months ago

    Hi again lovinggrandma (Angie), and thanks so much for your post and sharing your current experiences with us. Your pulmonologist does sound like a godsend; compassionate, understanding and collaborating with you through the process. Having your family supporting you in such a manner ( a daughter who is a nurse, and a devoted boyfriend) will provide you with the strength and desire to manage your condition successfully. We are gratified, too, to hear how you rely on our site and community! Please know we are always here for you and you are always welcome in our online community. Wishing you the best, Leon (site moderator)

  • lovinggrandma
    10 months ago

    God bless you everyone!!

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