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  • Question actually, I have stage 4 emphysema (COPD) and AFIB. My biggest problem with the fairly recent addition of AFIB is that the pills that I get make me gain weight, and the weight always seems to be around the stomach area. Of course this makes it harder to breath. So my question is are there others with the same two ailments and found a way around the weight gain? I'm in stage 4 and only have 20% lung capacity according to their silly test, also on O2 24/7, but I still manage to exercise everyday for at least 25 min. but it doesn't seem to help. I gain a pound one week and lose a half pound the next. Ant suggestions.

    I was wondering if anyone has heard of a study on CBD hemp oil treatment for COPD? CBD oil reduces inflammation, anxiety and depression, and is an expectorant. It has few if any side effects. I would like to take this instead of Prednisone. My doc is ok with me taking this product as long as I still use my Spiriva. Any information would be greatly appreciated. Thanks. L. Fetters

    Admitted to hospital yesterday morning with a blood oxygen of 82,you can I again what a mess I was, have been put in this machine which is humid oxygen and although my b,of oxygen is now showing 97 woohoo still feel yuk, it does nothing for your chest which is still tighter than a rubber band so cannot get any oxygen down there, has anyone else used I e

    Its hard for me to gain weight ..I need to put on about 15 pounds ..I get full so easy

    Does anyone else suffer with chest swelling, tightness, and bloating? Mine progressively gets worse thru the day. My chest feels swollen and my abdomen gets distended.

    What "invisible" part of COPD do you wish other people could see?

    Whether you're going on a trip to a faraway destination or just traveling around town: what is your experience when traveling with COPD? Please share about it with us in this forum!

    Hi all, newly diagnosed here. On February 24, I officially quit smoking as I was losing my breath just getting dressed. I've been smoking since I was 14 so about 23 years.I watched my dad die from this and lung cancer in 2011, I should of quit then. I feel pretty dumb. I have been seeing doctors for months due to fatigue and little pains here and there. Went to Pulmonologist on May 4th and I was diagnosed with stage 3 emphysema. Anyways, the dr called me about 45 mins after my appointment to tell me this, but I was eating lunch with my mom, and I was trying not to freak out in front of her. He asked if I could talk or had any questions and I stupidly said no. I wish I would have asked questions cause now I really know nothing. I have an appointment with my primary tomorrow. Anyways, the report says I have obstructed and restrictive defect on pfts. The blowing tests were hard, I felt like I was going to pass out. My fev1 was 0.9, 52% predicted. Fvc was 1.3L 50%. The fev1/FVC ratio was 73%. I have no idea what any of that means. Trying to look things up but it gets overwhelming. Now that I've quit smoking i feel much worse, and I keep getting pains at bottom of rib cage and feel completely swollen inside. I think I'm scared mostly cause 2 years ago I had an xray that showed nothing, now all the sudden this?! The worst part was telling my mom and brothers considering what happened to our dad. Since diagnosis day I have been so busy I've had no time to myself, or to really process, and trying to act strong for my mom. I think, if things work out this weekend I may take a trip and "process". Sorry so long and thank you for the welcome. It's nice to finally get this off my chest.

    Has anyone been enrolled in this ? I have gotten the option to do so from my pulmonary doc...

    I've been looking for a fitbit type of monitor that also tells me my O2 saturation levels for years. I was just at COPD10 and there's one that will be available in the US sometime relatively soon. I'm not trying to sell or promote this thing, but I think I will find it extremely useful for exercise and monitoring my O2 levels and others may as well. It means I won't have to have a fitbit and my oximeter when I go to the gym. Want more information? Email me. To the moderators: if this doesn't pass muster, is there a way that someone can word it so it does? I'm really just trying to give information I think would be useful to some people.

    I need to know if their is anyone using natural products to combat COPD? If so do they really work ? I have been trying some that seem to make me better and my flare ups are almost gone now. I use red ginseng and turmeric in pill form and I also am using a diffuser in my bedroom. It keeps the coughing away. I haven't used my ProAir HFA inhaler but few times since I started this a couple of months ago. Before I was using it everyday. I still am using my Onoro once a day. I was wondering is the Neti inhalers worked and is anyone on here has tried them. Also the salt lamp in the room helps too. You may think I am nuts but I do not like all these drugs that can cause so many side effects. Eating right helps too and I am also into exercising which helps. Well thats all for now later all.

    Had a flare up 2 weeks ago, Dr prescribed predisone and antibiotic. Cleared up in a week, but came back 3 days ago, coughing, excess pleghm, wheezing. Went to local er, 5 hour wait time, left without seeing Dr. Gonna try to see primary Dr.soon. Using nebulizer at home and OTC meds. What OTC meds are good for copd flare ups?

    When I'm moving around the apartment, I usually don't wear my oxygen tubing and I've begun to notice that when my oxygen level gets too low (below 88% blood oxygen level), my blood pressure goes up drastically. Is this normal, or just me? Either way, I'm going keep a closer eye on my oxygen level.

    Sure I am short of breath and get tired but I wasn't prepared for this . After my morning ritual yesterday, I did my powdered inhaler and went about my day. My grass needed cut really bad an it was a cooler 87degrees out so I attempted to mow . I can still do things but it takes a lot longer and some rather long breaks in between. I proceeded to mow. After mowing a rather small area , I started shaking and having a bit of difficulty catching my breath plus sweating . I decided to go in the house and rest a while . After about 2 hours and a change in clothes , I attempted to mow some more it was than 92 out but baby steps. Then I started the sweating shaking and fighting to breathe again so I stopped my task and went back inside. I was in my kitchen and had to use my emergency inhaler and then that is when it happened. I was leaning over the counter and regaining my composure when there was a knock at the door . I went to the door still sweating and huffing and answered it . A young boy was standing on my porch I have never met before. I said hello and he looked at me and that is when the real pain started. He said sir I live across the way and my grandmother and I noticed you are having trouble mowing your lawn. He said he had a rider and it would not be a problem to come finish your mowing for you and it wouldn't take that long and he didn't mind. That is when the realization set in! I hope he didn't notice the tears running down my cheeks. I told him ,I have COPD and though I would love to take you up on your offer, I have to do this myself. He said I understand sir my father died a few years back with what you have and he was a fighter too. He said if you ever get to the point you just cant do it anymore ,just let me know. I asked him his name as he walked away and told him David thank you I might just do that . I went back inside and started to cry. I did not realize a disease like this could strip away your pride !I know now what hurts the most from a conversation with a young boy that wants to help . The realization that you just cant do things anymore and having to much pride to except it. Having to much pride hurts the most !

    I was wondering if anyone has tried stem cell replacement? I've been looking into it but I'm not sure if I should do it or not. I've spoke to two people who had it done and they say their life has improved, however my pulmonary doctor wants to know your clinicals and many cannot provide them. It costs lots of money also...any ideas?

    Seeing a pulmonary Doctor the last few months. Got a breathing test done at hospital ( one where you sit in a machine). Dr said I have moderate copd, stage 2 i guess. Prescribed Trelegy, using it for a couple months Now. Once a day is good for us who forget that second dose. Seems to be working well. Good to share with others who understand copd. Merry Christmas to all and easy breathing to all.

    found out carbs produce co2

    For some, starting conversations regarding end of life care can be very difficult. When is the right time to start that conversation? Who do we start the conversation with? What are the next steps after a conversation? Hearing about others experience with these talks can be super helpful. Share your thoughts or ask a question or two below!

    The holidays can be a stressful time, especially when managing life with COPD. Share any helpful tips for managing holiday stress with fellow community members to support them during the holiday season!

    My nose runs constantly, and especially when using oxygen. I have to blow my nose or use a tissue 40-50 times/day. My pulmonologist cannot explain 'why' . Has anyone had this experience?
Viewing 20 topics - 1 through 20 (of 136 total)