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What has hurt me the most with COPD

  • By Daniel Nester

    Sure I am short of breath and get tired but I wasn’t prepared for this . After my morning ritual yesterday, I did my powdered inhaler and went about my day. My grass needed cut really bad an it was a cooler 87degrees out so I attempted to mow . I can still do things but it takes a lot longer and some rather long breaks in between. I proceeded to mow. After mowing a rather small area , I started shaking and having a bit of difficulty catching my breath plus sweating . I decided to go in the house and rest a while . After about 2 hours and a change in clothes , I attempted to mow some more it was than 92 out but baby steps. Then I started the sweating shaking and fighting to breathe again so I stopped my task and went back inside. I was in my kitchen and had to use my emergency inhaler and then that is when it happened. I was leaning over the counter and regaining my composure when there was a knock at the door . I went to the door still sweating and huffing and answered it . A young boy was standing on my porch I have never met before. I said hello and he looked at me and that is when the real pain started. He said sir I live across the way and my grandmother and I noticed you are having trouble mowing your lawn. He said he had a rider and it would not be a problem to come finish your mowing for you and it wouldn’t take that long and he didn’t mind. That is when the realization set in! I hope he didn’t notice the tears running down my cheeks. I told him ,I have COPD and though I would love to take you up on your offer, I have to do this myself. He said I understand sir my father died a few years back with what you have and he was a fighter too. He said if you ever get to the point you just cant do it anymore ,just let me know. I asked him his name as he walked away and told him David thank you I might just do that . I went back inside and started to cry. I did not realize a disease like this could strip away your pride !I know now what hurts the most from a conversation with a young boy that wants to help . The realization that you just cant do things anymore and having to much pride to except it. Having to much pride hurts the most !

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  • By Leon Lebowitz, BA, RRT Moderator

    Hi Daniel – thanks so much for sharing your experience and your deeply heartfelt emotional reaction. You are not alone! Many of our community members have been where you are and move forward with their lives in a most positive way. Granted, it takes some serious adjusting. Sometimes it’s a relative who makes the difference, sometimes it’s a friend, colleague, or acquaintance. Sometimes, it’s a small boy, who has been through something similar with his own father, being guided by his grandmother!
    You are always welcome here, Daniel!
    Warm regards,
    Leon (site moderator)

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  • By kwilter2

    I have to agree….not being able to do my own housework if the hardest thing of all.
    I am almost 81 years old and I have worked hard all my life. I did finally quit smoking but too late…damage was already done.
    I live alone and I am on oxygen 24/7 now but still manage simple household chores but have to pace myself.
    Thank God for “Swifter” as I can at least keep a path thru. I have wood floors and can kick/ slide the laundry to the washer/dryer and can keep up with the laundry.
    Use your nebulizer and anything else that helps bring up the mucus from your lungs.
    Keep a positive attitude and remember mild exercise is a big help.

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  • By Leon Lebowitz, BA, RRT Moderator

    Hi Kwilter2 and thanks for your post here. I’m sorry to hear you’re experiencing the challenges that you are at this stage of your illness. It sounds like you have the right approach and a good attitude as well. That can be a great help as you contend with each day in front of you. It’s always good to stay active and I thought you might find it helpful to look over this article on that subject: https://copd.net/living/community-tips-staying-active/
    All the best, Leon (site moderator)

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  • By John C.

    Hi Daniel Nester, I’m 65 now & feel the same as you, I want to do everything myself, I was able to cut the lawn this past summer (with some trouble) but this winter, I attempted to shovel the snow, not too deep, also light & powdery, I went out & shoveled about 10 shovels, & I didn’t even know if I was going to make it back to the house, used the rescue inh. took a while to get my breath back,, But that was when I knew how bad it was & cant do a lot of stuff I used to do.The cold & wind is the worst for me. Feel Better

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  • By Leon Lebowitz, BA, RRT Moderator

    Hi John – we appreciate you joining in the forum and sharing your experiences as well. There is no question the significant challenges posed to us with COPD. Keep in mind we have an entire online community here that is totally and completely focused on COPD. There is a lot of support on our website and over on our Facebook page as well. https://www.facebook.com/COPDDotNet/
    You are welcome here all the time and we hope you’ll frequent our website and Facebook page as often and for as long as you like.
    Warm regards,
    Leon (site moderator)

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  • By kwilter2

    I hate winter! I have severe COPD , live alone and try to do household chores by myself. Example…changing the sheets has become an all day ordeal. I just take it slow and just sit down when it gets too hard for me. I cannot wait for spring when I can open the windows and doors and bring in some fresh air into the house. I have been on oxygen 24/7 now for many years but I find that I feel so much better when I can get some fresh air as well.
    Anyone else hate winter like me?

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  • By camaur

    I am very proud person and hate to ask for help. I finally acknowleged (to myself), get help. I have a lady come in once a month and clean. I can keep up the rest. I also have a man cut my grass. This has taken a huge burden off of me. I am 79 years old. I just have to slow down, which is hard for me. I did Pulmonary rehab last year after I had pneumonia and I do go exercise twice a week.. I get very short of breath some days, and other days do well. I have oxygen if I need it. I just had an exasberation (sp) and trying to get back to exercise. I will do it because I am determined. Thanks for listening.

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  • By Leon Lebowitz, BA, RRT Moderator

    Hi camaur and thanks for sharing so candidly your experiences with COPD. It’s certainly NOT easy to relinquish feeling like you can do it all, but it sounds like you did the right thing by getting help with the cleaning and the yard work. It must be a big relief (as you say) since that ‘burden’ has been removed. Staying active is the key to maintaining yourself with COPD and it’s commendable and admirable that you’re keeping after that. Keep up the good work! You are always welcome here.
    All the best,
    Leon (site moderator)

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  • By GypsyJones

    I have the same problems….I have stage four…I live alone and have a lady come in every 2 weeks to help me…
    I am on oxygen 24/7…..Getting to the point to where everything is hard for me to do….I try to get out and walk
    AS MUCH AS I can….I try to do ad much as I can around the house…… I do feel better when I am outside… sometimes if I do to much I have to use my inhaler or I can not breathe…….I am so determine like you to keep going……….

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  • By toolate32

    Not being able to go out with my family or join any groups, my husband passed away 6 months ago and I am alone
    24/7 except for weekends. I would love to go to a mall and just see the decorations and people. I live in a neighbourhoood
    where no one speaks to each other so there is no help or conversation. Oxygen is next for me I guess. I am so glad
    no one else in my family has smoked, I cannot believe the damage smoking has done to millions of people.
    I am just like everyone else, take the puffers and keep on going, doing what I can. To everyone on this site, have a
    good day and do what you can,

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  • By Leon Lebowitz, BA, RRT Moderator

    Hi toolate32 and welcome. I’m so sorry for the loss of your beloved husband – please accept my condolences to both you and your family. It’s sad to hear of the sort of community dynamics you have in your neighborhood. Even though it would be good to have friends around in person, at least you have found our online community so that you don’t have to feel so alone. You know we are all about all things COPD and you are welcome to use our site as often and for as long as you feel the need. We are always here for support and to lend an understanding ear. If you haven’t as yet, you may want to check out our COPD Facebook page – you can access it here: https://www.facebook.com/COPDDotNet/. You will find many of our community members interacting there about all sorts of COPD related topics.
    We wish you the best and look forward to your continued participation.
    All the best,
    Leon (site moderator)

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  • By judy2121

    COPD, 2004 cancer in right lung. they removed part of my right lung. Then five years later got a spot on my left lung and had to be removed small piece, then cancer free . Then they put me on oxygen 4 years later.
    i should have know better, Back then everybody smoke and yes i drag a oxygen cord behind me at home and have a portable one for going out. It was not to bad, but now i can hardly carry my portable my kids do that for me. i have to tell
    them, slow down because i am connected to the portable we laugh about that) .

    Copd very hard on the heart also. So ended up with A-fib, they had to do a watchman on me few weeks ago. So that my life, I sometimes feel sorry for my self and i get so up set with my self for what i have done. I can not change anything, just remember someone else has it worse then me and I do the best i can. I wanted to make blueberry muffins from scratch I did, but took me 2 1/2 hrs just to get things together. I am a Baker and love making bread, rolls, sweets and can not do it anymore. I join this group to hear how you are doing and when I get so down in the dumps you will understand. Thank you for listing .
    Judy2121 P.S. not to good about spelling and writing so hope you can understand this thank you

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  • By Lyn Harper, RRT Moderator

    judy2121 – thank you for sharing your story with us. I’m sorry you’ve had to deal with two bouts of cancer – but it’s great that they found it and dealt with it.

    It can be very easy to blame ourselves for our health condition – but try not to. It’s not productive and it certainly doesn’t change anything. Hindsight is always 20/20.

    I’m impressed that you still try to do all things you do – and obviously with a sense of humor. Not being a baker myself, I’ve always marveled at anyone that has the talent to make bakedgoods. I’d encourage you to continue doing what makes you happy even if you have to take your time doing it.

    We’re so happy to have you as part of this community.

    Regards,
    Lyn (moderator)

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  • By helenwilks

    I berate myself for my past stupidity in smoking. Now I have two gorgeous grandchildren and want to spend as much time as possible with them. It is so hard not being able to run around the garden or park with them or to be able to keep up with their pace. I don’t like them seeing me struggle with my breathing after any exertion. There are days when I feel so ashamed of myself and then there are the days when I’m so grateful to have lived long enough to be a part of their lives. COPD is a disease that causes both physical and mental pain.

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  • By Leon Lebowitz, BA, RRT Moderator

    We hear you helenwilks and you are not alone! We have an entire online community that understands how you feel and what you have to say. I would suggest you focus on your latter sentiment, namely, to stay focused on the positive. You are here, you are alive, and you can enjoy your grandchildren to the extent that you are able. I know they appreciate having their grandmother around to enjoy and play with. Don’t dwell on the past, stay optimistic about your future!
    If there is anything we can do to assist you, please let me or any other team member know.
    All the best,
    Leon (site moderator)

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  • By easy

    I welcome everyone, I live in Hungary and only translates to google in English, which I write because I do not speak English.
    In May 2017 I was diagnosed with COPD – III.c. I have not smoked since
    May 2016. I stopped very fast – I smoked on Tuesday, not on Wednesday.
    I get Brimica medication.
    I’m having trouble doing things, depression, panic – but I try to do the utmost. I will now paint a wall. Slowly, stopping sometimes. but I’ll do it!
    Sometimes I feel bad, sometimes it is difficult to breathe – but after that comes a new day.
    I wish a lot of air for everyone!
    I hope you understand what I’m writing.
    Üdvözlettel: easy

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  • By Leon Lebowitz, BA, RRT Moderator

    Hi easy and thanks for participating and posting your thoughts and experiences. Yes, your translation came out that’s easily understandable. I’m sorry for the difficulties you’re facing but it does sound like you’re coping well and doing the best that you can. And, it’s good to hear that you’re always looking forward to that new day!
    If there is anything we can assist you with, please let me or any other moderator/team member know.
    All the best,
    Leon (site moderator)

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    • By easy

      Thank you, I fully understand the answer.
      Yes, I’m trying to do everything I can to make my days better. On this page (copd.net) I find a lot of useful information.
      I will even write to you.
      I wish you a pleasant breathing!
      Üdv: easy

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  • By Leon Lebowitz, BA, RRT Moderator

    Good to hear back from you again, Easy. We’re so glad to have you as part of our online community. We pride ourselves on having a wealth of information all related to COPD here on our website for you to use whenever you want to.
    Warm regards,
    Leon (site moderator)

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  • By judy2121

    I just have to vent then I will feel better
    Well thank you for being their for us.
    , But me I am in 4 stage. I take anxiety medicine and doctor told me I need to take depression medicine now I don’t think I need it..
    Kind makes me feel I going down hill more.
    I take breathing medicine would you believe 4 different kinds in morning and in after noon so I doing 7 a day. how about that! Do you believe I am a caretaker for my husband. had to take him to emergency yesterday. Thank goodness I was breathing pretty good. He said his heart was hurting. so we sat up there for 3 1/2 hr every okay I was worried about his a-fib. But he has a ulcer on his leg. which I change out ever day except 3 days aa week . He helps most of the time with cooking. Then also has kidney cancer. Which he goes to chemo every other week. he still driving so that help out.
    think that is what set my copd off where I gasp for air, he was angry with me I said something and started screaming at me. I have to remember he hurting also with a broken arm with not heal and they can not fix it.be cause of radiation in shoulder for cancer. But doc said the cancer for the last 8 month is dormant.
    So just went to my room. But today hard to breathe and taking staying in my room. I am sorry if I talk your ear off. I feel better.
    thank you judy
    s

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    • By Leon Lebowitz, BA, RRT Moderator

      Hi judy2121 and thanks for being so candid in your post – we appreciate you sharing with the community. It does sound like you have full plate, both with your COPD and also being a caregiver for your husband with his own set of complex medical issues. Please feel free to access our website as often and for as long as you want. We are always here to lend an empathetic ear and support. You can vent is much as you need to – especially, if it helps you as you said it did! Hang in there and keep up the good work! Leon (site moderator)

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    • By Lyn Harper, RRT Moderator

      Judy – You can vent here anytime you’d like! It’s sounds like you have plenty to vent about. I give you a lot of credit for everything you’re doing. As Leon said, it sounds like your plate is very full. I’m sure everyone, including yourself becomes frustrated at times and tempers are short. But, it sounds like you and your husband have been through a lot together and support each other when you really need it.

      If you haven’t already, I recommend you join the Facebook community for this group. It’s a very active, supportive group and can provide some great support in addition to what you already have. The link is at the bottom of this page.

      Wishing you the best!

      Lyn (site moderator)

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