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One in 2500!!

I am an ALPHA 1. This is a genetic (inherited) condition. It affects about one in every 2500 people. My Geno type is MZ and am at level 112. What does this all mean… it means I am a carrier of a genetic disorder that effects the production of a protein that helps to protect my lungs. There is nothing I can do about this, at least at the present time. What I am doing is volunteering for as many clinical studies as I can. If you have COPD you [can] be tested for ALPHA 1… not for yourself, but for your children, grand children, great grandchildren, and society in general. You can be tested for free, it is just a simple blood test… try www.alpha1.org Get your siblings tested, and any of your descendants should also be tested. I started to smoke around 15, if someone could have told me that I am an ALPHA and if I smoke it will be “when”, not “if” I will lose my chance as a happy breather. Why aren’t we testing more people… isn’t the life of one person worth it?

[Editor’s Note: content edited according to Community Rules so as not to provide medical advice.]

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Comments

  • Edi Mesa
    1 year ago

    I sought a second opinion and in the full testing request I was ordered a test for Alpha 1. I’m glad I’m getting tested because I’m sure I don’t have it simply because I’m the first one in my family.

  • Erin Rush moderator
    1 year ago

    Thank you so much for sharing a part of your story with the community, Waterboy491! You bring up an excellent point about getting tested for Alpha 1. Knowing whether or not one has the genetic condition can affect the treatment plans for an individual. And testing will help family members as well. Thank you for spreading the word about Alpha 1. While I am so sorry you are now dealing with COPD, I am glad you are using your knowledge to help others. Thank you again for sharing! Best, Erin, COPD.net Team Member.

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