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Lesson

I am almost 69 years old. Inhaled lots of second hand smoke as a child, but never smoked. Not even pot. I was diagnosed with asthma as a child, as were many who has URI infections and a wheeze. It never really bothered me. I competed in sports, and was always active. Went to law school, practiced law AND ran a restaurant my hubby and I owned at night, took care of a sick parent and sick child. I have worked out with heavy weights and cardio for 28 years. I was diagnosed by my GP after a terrible animal allergy reaction, thus when I got Candida from inhaling steroids, I turned to Oriental Medicine, and was told I had mold and fungus, NOT COPD in my lungs. I was fine for 3 years, Suddenly, I can’t breathe, learned I have Osteoporosis, degenerative disc disease, and was told because of my lung symptoms I need to see a cardiologist ASAP.

I now have appointments with both a pulmonologist and a cardiologist, but not overnight. I can not imagine not being at my gym several days a week. My social life is there, my bones are “treated” through the workouts I do, and now I am scared I could have cardiac arrest before I even see the physician. In a month will I be sitting in a rocker on Oxygen, inhaling steroids again, and my bones will be falling apart?

I just want to die.

Lesson: FIND A COMPETENT PHYSICIAN, not a naturopath. Physicians do not spend all those years studying their specialty for nothing. Acupuncture is great for sore muscles, not for curing serious health issues.

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Comments

  • EAT2017
    11 months ago

    New member here. I hope you are doing better now than you were when you posted on October 31, 2018. If you do or still think you may have mold or fungus infection I would encourage you to see an infectious disease doctor. I was diagnosed by an infectious disease doctor when my pulmonary doctor kept saying I had bronchitis and I just didn’t feel that that was the problem (coughing blood). I went to emergency room due to that and I started getting bad chest pain. But it was the infectious disease doctor who determined I had a MAC infection short for microbacterium avian complex infection. I was put on medication specifically for that strain bacterial infection and continued all my follow up with him. It took 2 years of treatment but I am clear now and feeling much better. I only suggest this because I know if it is a fungus they grow slow and the treatment is long but can be resolved. I wish you well in your doctor visits and resolution is found for you
    Take care
    Liz

  • Leon Lebowitz, BA, RRT moderator
    1 year ago

    Hi Sashabear and thanks so much for sharing your story with the community. You have an extensive story to tell and clearly are seeking out appropriate assistance running the gamut (from what you’ve said) from Asian medical guidance to pulmonary and cardiac specialists.
    If your circumstances are ‘urgent’ or ’emergent’ (you said you fear suffering a heart attack), you may not want to wait for your scheduled appointment but rather get the appointments moved up, OR, you may want to seek out emergency care even sooner.
    I do have a concern about you since you’ve stated: “I just want to die.”
    You may want to seek out other assistance if you are seriously making that statement here.
    Please let us hear back from you. I realize you posted this one week ago and hope you have made progress since that time.
    Wishing you well,
    Leon (site moderator)

  • Barbara Moore moderator
    1 year ago

    Hi Sashabear,
    Your story is so sad and so tragic in the shadow of doing what you thought was best. We are glad you are here now and hope you find the information helpful
    Warmly Barbara Moore (site Moderator)

  • Alesandra Bevilacqua moderator
    1 year ago

    Sashabear, I commend you for sharing your story so openly with us. You are not alone in this journey and battle. Fear is a common and normal reaction to your diagnosis. I know it may be difficult to do so, but wait until you speak with your doctor and pulmonologist and you can develop a safe exercise plan for yourself. Everyone’s journey with COPD is different and each person progresses at their own pace. I’m so sorry to hear you feel like this. I would encourage you to speak with your doctor about how you are feeling. You may also find benefit to speaking with a counselor or therapist to help you process the array of emotions that come from living with COPD. Please never hesitate to reach out to the National Suicide Prevention Lifeline: 1-800-273-8255. They are available 24/7 to speak with you if you are experiencing some dark moments. This community is always here to share stories, resources, support and a listening ear. Reach out anytime you’d like. We are glad you are here with us. Thinking of you today. Warmly, Alesandra (COPD.net Team)

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