idiopathic pulmonary fibrosis

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   <p>Hi, my younger brother just went through a bilateral tx and I was one of his caregivers. What I found helped me was to go to the FaceBook page of the people waiting for and the people who are dealing with transplants. Read about what&#39;s going on, who the favored docs, what drugs had which side effects, trials and solutions are all there. Call your tx hospital and ask for the person who helps families with coordination of the transplants--see if that person can direct you. Get to know that coordinator person as soon and as well as you can--ours had the answers for everything. We were at the Univ of Washington. <br> Tell your family and friends what&#39;s going on--allow them to help. Be ready to ask for a bit of help and don&#39;t be the ONLY caregiver if you don&#39;t have to. <br> TAKE CARE of the caregivers!! It&#39;s hard to stop working to help, to go get, to call, etc. Be ready to delegate. <br> Communicate--Full Disclosure--Ask questions of the Dr&#39;s and don&#39;t let them shut you down. Best of luck!!! Best Wishes!!!</p>

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