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Hard to breathe

I was diagnosed in March 2015. I had gotten sick from cold and flu made lungs collapse. Did a 5 day stay in hospital when I left they prescribed $900.00 dollars of meds my insurance did not cover and I was put on oxygen. I wasn’t sure what to do I have to work and can’t do what I do with a oxygen tank hooked to my side, so I prayed and asked God for help. I quit using the oxygen in 3 days, went back to work in 5 days I was trying to hide SOB that I am dealing with, but each day I got better.

Then a friend that works for Drs gave me some symbicort to take 2 times a day. It helped on some days but this is not the answer. When it runs out what to do after that? Then I heard of a COPD study thats trying out new meds and if you qualify you can join so I did and it’s for 52 wks and free meds and at this point it’s were I am with this problem of mine. I have been researching a cure but it’s done with stem cell research. They say it is a cure, I have not at this point confirmed the cost but from what I have been hearing it’s not covered by insurance and cost more money than I have. $20000 is what the procedure costs I have been told. Again I have not confirmed this but if God is willing and provides the funds, this is what I will do. The stem come from your body and I read you get immediate results and in a few weeks you’re hiking, taking long walks, and doing a lot of the normal things that you’re not able because of SOB. So pray for me and I will stay in touch and keep this forum informed as to my progress.

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Comments

  • Christina Mattoni-Brashear moderator
    3 years ago

    Hello Dboyce,

    Thank you for sharing your story and for being a part of our community!

    We have a very supportive community here, and our members may have other ideas and additional information for you, as well as a place to vent on days that maybe more challenging. It can certainly be frustrating when your insurance doesn’t cover the medicines you were prescribed – have you spoken to your doctor about the possibility of an alternative that is covered by your insurance?

    While everyone’s experiences are different, it sounds as though you’ve done a lot of research on your own. I thought you might find these articles interesting. The first is on using natural remedies, supplements and vitamins with COPD:

    https://copd.net/answers/expert-answers-vitamins-supplements/

    The second might offer some additional or new information about the stem cell research you mentioned:

    https://copd.net/news/stem-cell-therapy/

    And the third contains tips for saving money with COPD:

    https://copd.net/guest-expert/expert-answers-saving-money/

    Since you mentioned you were concerned about being able to work, I also thought this article may provide some insight on workplace accommodations and your right to have the necessary tools and environment to perform your job:

    https://copd.net/living/workplace-accommodations-under-the-americans-with-disabilities-act/

    Please continue to reach out to the community at COPD.net. We love hearing how you’re doing and about your experiences.

    Again, thanks for sharing!

    Wishing you all the best,
    -Christina (COPD.net Team)

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