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Where can I find caregiver support here?

Where can I go to get caregiver support with general questions. Here? My spouse has COPD, smokes heavily still (3 packs a day), consistent cough, can’t walk more than .1 miles, extreme fatigue and in severe denial. I’m at a loss and trying to hope for the best and prepare for the worse. It’s exhausting as a caretaker and a spouse.


Community Answers
  • Janet Plank moderator
    1 month ago

    Hi DLITE4TONIA and KareyS

    I want you to know that I’m thinking of you. Being a caretaker, especially to someone close to you, such as a spouse, can have challenges. From experience, it’s important to have a support system for yourself. It would help if your spouses would too, but that’s their choice.

    Do talk to your spouses doctors or even their nurses. The doctors might not be able to share information with you, however, you can share information and concerns. You may have to make an appointment..

    Can you find someone to sit with your spouses for a little while so you can get a time out? Your health is important too and can best care for your loved ones when you are renewed.

    Please let us know how your spouses are doing and how you are as well. We are here for you all.
    Janet (site moderator)

  • KaryS
    3 months ago

    Hello
    I share the helpless feelings of DLITE4TONIA, I too have a head strong husband with stage 4COPD
    trying to get him to walk or exercise is difficult, not sleeping, anxiety, panic attacks. Just plain worn out. I am hoping that this new site will give me some assistance in dealing day to day
    K

  • Leon Lebowitz, BA, RRT moderator
    3 months ago

    Hi KaryS and thanks for your post. As you can see, you are definitely not alone in your feelings as a caregiver. I believe you have come to the right place! We are all about all things COPD and COPD related – I’m hopeful you will find all you need right here on our website. You may also want to check out our COPD Facebook page. You will find many of our members there interacting all the time on (COPD) issues that are of concern to them. You are always welcome here! Leon (site moderator)

  • gpalmarella moderator
    3 months ago

    Hi DLITE4TONIA! I want to piggyback off of Leon here and also direct you to this special section on COPD Caregivers & Loved Ones: https://copd.net/copd-caregivers-loved-ones/. This will have many of the same articles he already shared, but you may find something new as well. Please let us know if you can help you find anything else! Warmly, Graceann (COPD.net Team Member)

  • Leon Lebowitz, BA, RRT moderator
    3 months ago

    Hi DLITE4TONIA and thanks for your post. We certainly hear you! There is no question that being a caregiver to a spouse has its challenges. You’ve come to the right place! We have a good number of articles covering the subject of caregivers and COPD. This link will provide you with access to many of them: https://copd.net/?s=caregivers. I realize it is a lot of material – don’t feel you have to read them all at once. I thought you might keep them handy as reference material moving forward. If we can assist you in any way, please let us know. Wishing you well, Leon (site moderator)

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