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Has anyone used augmentation therapy for Alpha-1?

Has anyone with Alpha-1 used augmentation therapy and then stopped it? I am curious to know if breathing was better, worse or the same after? My doctor is not sure if it will help me or not. I am wondering stopping it later. I am stage 2 emphysema, Thank you for your thoughts.


Community Answers
  • Janet Plank moderator
    2 months ago

    Hi Domino3076

    Please disregard my earlier post which has incorrect links. Let me get it right here.

    I don’t personally know of anyone who has used augmentation therapy. There are numerous Alpha-1 groups online. You could search them out.
    In the meantime, here are a couple of links for you:

    https://www.alpha1.org/Newly-Diagnosed/Living-with-Alpha-1/Treatment

    https://www.alpha1.org/Healthcare-Providers/Testing-and-Treatment/Current-Therapy

    Janet (site moderator)

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