The COPD Stigma.

The COPD Stigma

For the vast majority of people, when they hear the words “COPD” they automatically think “they must be a smoker.” While smoking is the leading cause of COPD, it isn’t always the case.

Stigma is defined as a mark of disgrace associated with a particular circumstance, quality, or person.

Stigma occurs when society labels someone as tainted, less desirable, or handicapped. When I tell people I have asthma/COPD overlap, I am always then asked if I am a smoker. When I reply with a simple “no, I have never smoked” I get a puzzled look or a “huh? How is that possible?”

As I stated above, while smoking is the leading cause of COPD, 25% of COPD sufferers have never smoked. The other 25% of people have COPD as a result of occupational, environmental, and genetic factors. Due to the smoking stigma, many people with COPD suffer in silence, whether or not they have smoked.

For a very long time I kept my diagnosis in the closet. It was so much easier to just tell people that I have asthma, rather than explaining that I also do in fact have COPD. I received my COPD diagnosis at the age of 25. It was a major blow to hear that news, especially being a Respiratory Therapist and knowing what I do about the lungs. I had recently given birth to my first child and now getting the news that my lungs were essentially in a fixed state and those of an 80 year old was terrible.

I wanted to spend some more time focusing on the other 25% of the causes of COPD. With over 11 million people in the United States diagnosed with COPD, 25% is 2,750,000 people. That is almost 3 million people with COPD who have never smoked a day in their life.

Workplace exposure

There are many careers that have a significant amount of exposure to lung irritants. Some of these being careers in the coal industry, grains, chemicals, and jobs that have excessive exposure to dust etc. Miners and textile workers being in the the higher risk of developing COPD category.

Genetic Factors

A small number of COPD patients suffer from a genetic imbalance called alpha-1 antitrypsin deficiency which is a protein that normally protects the lungs against various enzymes that naturally occur in the body.

History of Asthma

There are more recent studies that suggest that some childhood asthma sufferers develop COPD later in life. The repetitive lung inflammation over the years which leads to weakened lungs can lead to a higher risk of getting a severe obstruction of the airways.

Air Pollution

Living in places with higher than average air pollution can lead to COPD. Not only outdoor pollution in highly populated areas with a lot of motor vehicle exhaust, but also in homes who use wood to heat (in a non sealed fireplace or stove) or open cooking fire smoke more commonly found in developing countries.

Regardless of the cause of a person’s COPD, there shouldn’t be a sense of shame surrounding it. There is a definite lack of education surrounding COPD as a whole due to the COPD stigma. It’s up to us to start the dialogue to transform those who are misinformed.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The COPD.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (2)
  • Rea72
    8 months ago

    Even after reading this article I must say I am ashamed of smoking for over 40 years.
    I always had a fear of the consequences of smoking since every year I had bronchitis growing up.
    Both my parents smoked & passed from heart disease, mom at 53 & dad at 61.
    So I’m 68 & have grieved my life since I was 64. Simply moving causes my oxygen to drop into the 70’s. Walking makes me so short of breath I fight the panic I feel & pray my numbers come up.
    My husband is my primary care giver. He is an amazing man & It breaks my heart to be such an incredible burden to him.
    My last Pulmanary drs visit she suggested looking into hospice with a social worker.
    I am angry with myself & to be completely honest I am angry with God.
    Forgive me for so much negativity. I’m sorry

  • Leon Lebowitz, BA, RRT moderator
    8 months ago

    Hi Rea72 and thanks for so candidly sharing your feelings and experiences with COPD. Please know we are always here to lend an ear, provide support or supply whatever other emotional assistance we can, given your concerns. We’re sorry to hear you’re having such a difficult time now at this stage of your life. I’m sure your dear husband will continue to look out for you and continue to be your caregiver at this time, as he has all along.
    Warmest regards,
    Leon (site moderator)

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