Community Feedback: A Not-So-Ordinary Day in the Life

“This is my day exactly, and this could have been written by me word for word. It comforts me to know that I am not a weak person, my body is weak. While I don’t want anyone to feel this way, it is nice to know I am not alone.”

Whether it’s going out, or staying at home trying to complete a seemingly simple to-do list, COPD can make daily tasks a true challenge. Recently, we shared an article with you the community, that was written by one of our community experts on what a day in the life with COPD is really like. The amount of discussion and comments we received that centered around the article, and your daily life experiences with COPD, were incredible. So incredible, in fact, that we wanted to capture your sentiments in an article of their own.

Household Duties

“I too need about 2 hours to bathe and get dressed, so most days, it is just getting dressed and running a comb through my hair. I do what I can…”

“This is my life. I lay in bed thinking of everything that needs to be done and what I would like to get done. Then my day starts and ends with only the basic needs sometimes done.”

“I have such high expectations of all I want to do today as I lay in bed. The minute I sit up, reality sets in and I am so short of breath I can’t even make the few steps to the bathroom without a couple puffs on my Ventolin”

If you struggle to complete once simple household duties, you are certainly not alone. COPD can make even the most basic tasks a serious battle. Fortunately, community members have generated some tips that may help you with some of your chores.

Maintaining a Positive Mood

“I stopped working from my job I loved, and I also suffered from some depression

“That sounds exactly like my days and it really stresses me out. I was always so proud of my clean and organized house. It’s so depressing!”

Depression can also be a familiar feeling for those with COPD. But it is important to know you are not alone. Staying positive can be a struggle, but reducing stress, exercising (as best as possible), and trying to turn a discouraging situation into a positive one, can all help fight depression and negative thoughts. Seeking out personal support or medical advice is also never a bad option, and may help tremendously.

Feeling Imperfect

“I thought it was just me being lazy or having given up”

“I’m embarrassed about how slow I am, I avoid doing things with my kids because I don’t want them to see me as incompetent”

“I’ve been amazed at so many that say they are doing so well. I am not.”

“What good am I? I can’t even walk my dog anymore”

Along with feelings of depression can come feelings of negative self-worth. Reaching out to family and friends to create open lines of communication, as well as being a part of online communities like this one, where others are experiencing similar situations as you, can help you feel supported and less lonely.

Wherever you are in your COPD battle, know you are not the only one struggling. Working to improve your self-perception, and doing things a little at a time, can improve your ordinary, day-to-day experience in ways you may have never thought possible!

Comments

View Comments (4)
  • garricks
    2 years ago

    Oh, this is so much me. As I’m falling asleep I’m planning everything I need to do the next day. I might get 1/4 to 1/3 of it done. My house is such a wreck I won’t let anyone inside, because I’ve been depressed for over 10 years, and realize I had COPD a few years before it was actually diagnosed.

    I’m trying to declutter and get rid of the recycling, but it’s difficult to make progress when so much junk mail comes in during the day, etc. I call my trips to the dumpster my “physical therapy” because at least it gets me moving.

    I’m so glad I found this site…and finding that others have similar feelings. Thank you so much for the support!

  • Leon Lebowitz, BA, RRT moderator
    2 years ago

    We’re glad you found our site too, Garricks. It’s good to hear you’ve turned your ‘declutter routine’ (getting rid of the recyclables) into your own personal ‘physical therapy’. Keeping active is really the key as this article emphasizes: https://copd.net/living/staying-active-is-key/ I’m sure you will find it helpful and interesting to read – it’s from one of our regular contributors, Derek Cummings.
    Please feel free to access our site as often and for as long as you like. We are always here to lend support or just a friendly ear; we also have a wealth of COPD material for you to look over as you see fit.
    If there is anything we can assist you with, please let me or any other moderator/team member know.
    All the best, Leon (site moderator)

  • Cotter
    3 years ago

    I get so much out of your articles & all the input from others who are dealing as I am with copd. I am in the “end stage” struggle too. For a while there I was really down & figured I just couldn’t do much any more. I was ready to quit, sit back & let my family take over. That is what my Dr. Told me to do. “Let them do for me.”

    But then I found your web site. And it has made all the difference. Reading how other people cope who are worse than me has given me new hope. Thank you so much. We all can still learn…..

  • Leon Lebowitz, BA, RRT moderator
    3 years ago

    What a sensational viewpoint for your to share with our community, Cotter. You are positively inspirational!!
    If you haven’t as yet, you may want to check out our Facebook page. It looks as though you have plenty to contribute and I’m quite sure our community members will benefit from you input.
    You can find us at https://www.facebook.com/copddotnet/
    All the best,
    Leon (site moderator)

  • Poll