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People supporting other people who are also using social media as a means of communitcation

Tips on Finding a Support Group

Hanging around like kinds of people gives us a sense of comradery. We enjoy being around people like ourselves because they are the ones who offer no judgment. It’s called support and can present itself in many forms. Regardless of the kind of support, we as humans thrive when we are supported and our needs are satisfied. Then we experience better mental health, understanding of our illness and overall we live a better quality life. Here are some tips for finding a support group.

Decide what you want to get out of a group

Do you want to take an active stance or do you just want to look around and listen? Read the rules. Do the goals of this group meet your expectations? Next, figure out what you want to learn, what do you want support for? The internet has everything from mindfulness and gardening to ingrown toenails and brain surgery and everything in between. Figure out different ways to ask the same question and use different words such as oxygen and respiratory.

Caregivers are a good first place to begin. Most of the information you need will be found on the internet. Ask a caregiver to set some time aside to show you around the internet and ask for opinions on getting the best local information. Once you have local info, you can begin to span outward because, with the internet, the world is your oyster.

Nurses, doctors, and social workers have an abundance of information for the asking. Stay in contact and leave a number so they can call or text as information becomes available. Ask for information on any local support groups that are run through the hospital or within the city. Hospitals often have a support group as a step down from hospital discharge or Respiratory Rehab.

Finding support through social media

Facebook is the main place for closed support groups. A closed group will only share comments or posts to those within the group so you can feel free to use it as a safe place to ask any question or give any comments. Your questions stay private.

There is a good amount of peer groups on Facebook that cover an array of information. Most groups are peer groups and that means normal people like you and I get help from normal people like you and I. There is no access to medical professionals.

If you don’t have a Facebook account, it is easy enough to open on and type into the search bar looking for COPD, Respiratory, Exercise, Mindfulness, the list goes on and on.

Other social media options for support

You will also find support groups on Instagram, Twitter, and even YouTube as well as more blogs than you could possibly imagine by searching Google. Only join free groups and be wary of anyone who asks for any money.

In person support groups

Call your local Lung Association, COPD Association, Hospital, or Gym for guidance and support on local groups that run in your area.

Use caution and common sense when giving any personal information online or in person and expend this caution when believing the information from the internet. Your doctor should always have the last word on treatments. Most support groups are free of charge.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The COPD.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • BeverlyDeMarco
    1 month ago

    I am still not finding a Support Group or BETTER BREATHERS CLUB IN MY AREA, OCALA, FLA, THANK GOD I HAVE THIS COPD.NET SO I CAN HAVE SOME ADVISE AND PEOPLE WITH THE SAME HEALTH PROBLEMS,, THERE IS ALWAYS SOMETHING NEW TO LEARN ABOUT COPD AND NEW IDEAS. THANKYOU!

  • Barbara Moore moderator author
    1 month ago

    I am really sorry to hear that BeverlyDeMarco, If there is no group in your area perhaps you should consider starting one. It could be a low key lunch with a few people from you area. Groups don’t have to be formal. Barbara Moore (site moderator author)

  • Lyn Harper, RRT moderator
    1 month ago

    Hi Beverly – It’s too bad you’re not having better success finding a local support group. But, you’re right, this group is great and I’m so happy you’re part of it. There definitely is always something new to learn about COPD and with all the community members here, you certainly have access to a lot of help.
    Lyn (site moderator)

  • BeverlyDeMarco
    1 month ago

    I AM NOW TAKING A SHOWER WITH THE CANNOLA ON MY FACE, I LEAVE THE WINDOW OPEN AND USE THE FAN AND ONLY WARM WATER, NOT HOT. , ITS WORKING WELL FOR ME AND NOW NOT SO SCARED TO TAKE A SHOWER.

  • Leon Lebowitz, BA, RRT moderator
    1 month ago

    Hi Beverly and thanks for your post about taking the shower. I am sure you are so relieved now that you are finally able to take one, and use the oxygen at the same time. I remember you had expressed concerns about using the shower and the oxygen at the same time. All the best, Leon (site moderator)

  • Barbara Moore moderator author
    1 month ago

    Good for you. Using the tools available really helps make it easier and lightens the load. Barbara Moore (site moderator)

  • BeverlyDeMarco
    3 months ago

    I thought I would try to take a shower today, I kept the window open and the bathroom fan on. I kept the Oxygen hose outside the shower door next to my telephone and towels and clothes, I used warm water,not hot water which made it a little easier to bare, It was a little better than the last shower I took a couple of days ago but still felt very uneasy and nervous. Would love to hear about your experience when taking a shower if anyone is reading this comment. Thank you Beverly DeMarco

  • Barbara Moore moderator author
    3 months ago

    Hi BeverlyDeMarco,
    Showering is a very hard task for those with COPD. I wrote and article awhile back on this very subject and if you search this site you will find a few other articles on the subject. I am leaving a link to my story on showering but feel free to read them all. It sounds like you have good steps to this issue and I hope you feel more successful with every shower,

    https://copd.net/living/personal-hygiene-showering/

    Barbara Moore (site moderator)

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