Skip to Accessibility Tools Skip to Content Skip to Footer
Lungs with bandaid

Beyond the Lungs: 2017 In America Results

Over 2000 individuals from the COPD community shared their thoughts and experiences in our survey, covering everything from symptoms to what it’s like living with an illness that is difficult to diagnose and even more complicated to manage. Here are the highlights:

Beyond the Lungs: 2017 In America Results
Beyond the Lungs: 2017 In America Results

Additionally, fatigue was the second most common and third most challenging symptom for respondents. While many think of COPD as just a lung disease, limited oxygen can affect every part of the body and cause severe fatigue! As the community often says: “There’s tired, and then there’s COPD tired

Beyond the Lungs: 2017 In America Results

COPD is not just about the lungs! Most respondents did not feel confident that they could keep the emotional distress caused by COPD from interfering with their lives, but only 19% were currently involved with a COPD support group. It’s okay to be afraid, and it’s okay to talk about it!

Beyond the Lungs: 2017 In America Results
Beyond the Lungs: 2017 In America Results

A flare can be triggered by anything, especially weather changes, strong scents and respiratory infections. But it’s not just the lungs that are affected during a flare – the intense coughing and shortness of breath causes incontinence in 59% of respondents

Beyond the Lungs: 2017 In America Results
Beyond the Lungs: 2017 In America Results

Respondents express a lot of fear and anxiety over the future with COPD, but it’s important to remember that COPD is NOT a death sentence and there is always a community who understands and is ready and willing to listen at any time!

The COPD In America 2017 online survey gathered insights from over 2,000 individuals currently diagnosed with COPD, emphysema, or chronic bronchitis to better understand their symptoms and management of this condition, as well as its impact on their lives.

Comments

  • respiratoryteacher
    6 months ago

    Clinical Sims Exam Study Preparation

    Are you struggling to pass the tmc exam? Respiratory Teacher can help you pass the tmc exam with flying colors. Order the ebook with 111 pages relevant to passing the tmc exam. Pass rate 99%. Pass The TMC Exam With Ease. Passing The TMC Has Never Been Easier With Our Ebook. Additionally, Using The Study Guide Will Give You A 99% Pass Rate. Finally,The Information In The Ebook Was Compiled From Recent Test Takers.

    Therefore, With That Being Said The Information Gathered Could Be Fair Game For The Test Candidate. Being a Respiratory Therapist is a great profession. It’s even better when you’re a Registered Respiratory Therapist. At Respiratory Teacher our goal is to get you the credentials needed to succeed in your career. We want you to pass the TMC. The NBRC exam can put a strain on you mentally if you’re not prepared.

    That’s why we developed this awesome study guide that will prepare you to sit for the NBRC Exam. The great thing about our study guide it was formed by a group of test takers that actually sat for the exam. Additionally, we know exactly what’s on the exam. Furthermore, we have all the information needed to ace the exam on your first try! That should be great news for anyone that has to sit for the NBRC. Knowing this information is all the more reason why you should want to purchase our study guide.
    Order your study guide today!

    http://www.respiratoryteacher.com

  • kimmer1968
    8 months ago

    I feel so alone…Without my family I would not have been able to quit smoking 3 months ago but now they think I’m healed! They don’t understand then I’m tired constantly tired! They think I’m lazy! they don’t understand that just the motion of vacuuming takes me 20 minutes to catch my breath and another 20 minutes to get my legs were they work again. They don’t seem to understand that I’m not the same woman I was and then it just about kills me to get up in the morning a clean the house take care of a four-year-old my niece help take care of my elderly mother cook dinner to the dinner dishes help my 13 year old with homework they think it’s good for me to do all of this every single day! How do I get to understand that 61% of my lungs it’s not the same as 100% of my lungs and that I heard all the time and then I’m scared all the time I just don’t know how to get them to understand! Please help me! I will say I was able to walk a half a mile without dying and I survived influenza a without hospitalization so I praise God for that. Thank you whoever is reading this for just listening have a day 4 deep breath and laughter!

  • Lyn Harper, RRT moderator
    8 months ago

    Hi kimmer1968 – I hear you! It’s great that you quit smoking! I applaud you for that. But, I do understand that it doesn’t mean you’re suddenly a new person. COPD definitely takes it’s toll and we need the people around us to understand that. That’s can be easier said than done.

    Explaining COPD to family and friends so that they have a better understanding of your plight is a question that has come up a few times on this site – so obviously you’re not alone. Here’s an article that had some suggestions for what to say to family and how to get them to understand better. https://copd.net/answers/expert-answers-explaining-to-family-friends/

    I hope it helps.

    Regards,
    Lyn (site moderator)

  • Leon Lebowitz, BA, RRT moderator
    8 months ago

    Hi again, Kimmer, and thanks for this most recent post. I want to add my congratulations to your accomplishment of quitting smoking. That is a significant achievement and one you can genuinely be proud of.
    As Lyn has suggested, not smoking is not all there is to managing one’s COPD. I see she provided a link to an excellent article about explaining this condition to family and friends.
    You can never have too much information about this important issue. Sometimes, sharing this information with your family may help them to understand more about what you’re going through. I thought this article might also provide you (and them) with additional insight: https://copd.net/living/explaining-to-family-and-friends/. What do you think? Leon (site moderator)

  • kimmer1968
    8 months ago

    I hurt all over all if the time…my doc doesn’t seem to get it.

  • Leon Lebowitz, BA, RRT moderator
    8 months ago

    Hi Kimmer1968 and thanks for this post. I’m sorry it took (me) 2 weeks to respond, but I just saw it now. How are you managing the ‘hurt all the time’ symptoms you mentioned? If your physician doesn’t seem to understand, what would be your next step to help manage the pain? Leon (site moderator)

  • HOPS
    2 years ago

    I. Guess Im pretty blessed because Im still moble enough to walk around without 02 all day and as long as I use my nebulizer 3Xs a day to keep the mucus frm accumulating. I dont have any other symtoms I will celebrate 3yrs smoke free next week has has made a world of difference I no longer need to get up in the middle of the night to nebulize and I can go from 8Pm to 8AM with a good nights sleep I do use 2 liters of 02 at night but I feel blessed to not have the debilitating symtoms yet and I am very pro active in my routines of treatment Thank you and Deep Breaths to one and all

  • Jenn Patel
    2 years ago

    Wow HOPS, congratulations on 3 years smoke free!!! That is FANTASTIC and, as you know, one of THE best things you could do for yourself. We are so happy for you! Thank you so much for sharing your experience.

    Best,
    Jenn (COPD.net Team)

  • JSmith
    2 years ago

    Interesting article but I still don’t see any recommendations on dealing with the rib cramping.

  • Susanmarie
    2 years ago

    When I have rib cramping I do pused lip breathing, it does help to ease it, however my gp imformed me that it was costicondritis and to take pain relief that was safe for me to use with my other meds.

  • Leon Lebowitz, BA, RRT moderator
    2 years ago

    Thanks for the update, Susanmarie. Glad to hear your physician was able to guide you appropriately with a more accurate diagnosis.
    All the best,
    Leon (site moderator)

  • Leon Lebowitz, BA, RRT moderator
    2 years ago

    Hi again, JSmith. Here is the link to our Facebook page where discussions are ongoing based on the article (above): https://www.facebook.com/pg/COPDDotNet/posts/?ref=page_internal
    Warmly,
    Leon (site moderator)

  • Leon Lebowitz, BA, RRT moderator
    2 years ago

    Hi Jsmith and thanks for your inquiry. I see that Jenn has provided you with a response and hope you will take up some of your inquiry with your health care provider. However, in view of your concerns with rib cramping, I thought you might find it helpful to look over this material on that very subject: https://copd.net/living/community-feedback-rib-cramping/. In addition, you may want to check out our Facebook page here: https://www.facebook.com/COPDDotNet/. There you will find a variety of discussions about topics related to COPD. There have been topics focused on rib cramping. I’m sure if you bring it up again, you will see a lot of interaction.
    All the best,
    Leon (site moderator)

  • Jenn Patel
    2 years ago

    Hi JSmith,

    Thanks for your note! You are correct, it’s more like stats of what people report experiencing with rib cramping. While we cannot give medical advice via the internet (for people’s safety) we do encourage people to speak with their doctor or specialist about this if they haven’t already – AND we encourage discussion between community members! Are there any tactics you’ve tried that help you? Perhaps other community members will chime in as well.

    Thanks again for you post.

    Best,
    Jenn (COPD.net Team)

  • kat27406
    2 years ago

    Interesting. I was diagnosed in 1989 shortly after a corrosive chemical exposure and years of smoking. I’ve been very fortunate to have had great doctors. I watched both my parents die of this dreadful disease. At 70 now I do want to travel. It’s good to hear from others how they manage.

  • Casey Hribar moderator
    2 years ago

    Very interesting, Kat27406! I’m glad to hear you’ve had great doctors, however, I’m so sorry to hear about your parents. Please know we’re here for you. You’re certainly not alone in this. I’m glad to hear that you want to travel, and are learning from other community members! How awesome! Please keep us updated! -Casey, COPD.net Team

  • Janet Plank moderator
    2 years ago

    Very interesting statistics. We can learn so much from these. This will be great for discussions and to share with family. Also, interesting to take in to the doctor on my next visit, if there is time. Janet: Moderator

  • Fred B
    2 years ago

    Im not sure whether I have cramps or not but I sure know that when I am feeling really uncomfortable in the chest area if I LAY DOWN WITH A HEATING PAD ON MY CHEST and it sure helps. It seems to relax my chest muscles. I discovered this by just trying it and it works for me. I also have chronic anxiety, depression, alcoholism and post traumatic stress disorder. I seem to spend more time in my head than in my real life. I am getting all the help I can to learn to live with all of the above so I guess it could be worse. Sometimes I find it hard to see just how blessed I am all things considered.

  • Leon Lebowitz, BA, RRT moderator
    2 years ago

    Thanks for your post Fred B – it sounds like you certainly have your share of maladies to deal with. From what you write – you do sound like you’re handling all you can, the best you can. I’m glad you found something that works for your cramping. Keep up the good work!
    Leon (site moderator)

  • Poll