Lungs with bandaid

Beyond the Lungs: 2017 In America Results

Over 2000 individuals from the COPD community shared their thoughts and experiences in our survey, covering everything from symptoms to what it’s like living with an illness that is difficult to diagnose and even more complicated to manage. Here are the highlights:

Beyond the Lungs: 2017 In America Results
Beyond the Lungs: 2017 In America Results

Additionally, fatigue was the second most common and third most challenging symptom for respondents. While many think of COPD as just a lung disease, limited oxygen can affect every part of the body and cause severe fatigue! As the community often says: “There’s tired, and then there’s COPD tired

Beyond the Lungs: 2017 In America Results

COPD is not just about the lungs! Most respondents did not feel confident that they could keep the emotional distress caused by COPD from interfering with their lives, but only 19% were currently involved with a COPD support group. It’s okay to be afraid, and it’s okay to talk about it!

Beyond the Lungs: 2017 In America Results
Beyond the Lungs: 2017 In America Results

A flare can be triggered by anything, especially weather changes, strong scents and respiratory infections. But it’s not just the lungs that are affected during a flare – the intense coughing and shortness of breath causes incontinence in 59% of respondents

Beyond the Lungs: 2017 In America Results
Beyond the Lungs: 2017 In America Results

Respondents express a lot of fear and anxiety over the future with COPD, but it’s important to remember that COPD is NOT a death sentence and there is always a community who understands and is ready and willing to listen at any time!

The COPD In America 2017 online survey gathered insights from over 2,000 individuals currently diagnosed with COPD, emphysema, or chronic bronchitis to better understand their symptoms and management of this condition, as well as its impact on their lives.

Comments

View Comments (13)
  • HOPS
    1 year ago

    I. Guess Im pretty blessed because Im still moble enough to walk around without 02 all day and as long as I use my nebulizer 3Xs a day to keep the mucus frm accumulating. I dont have any other symtoms I will celebrate 3yrs smoke free next week has has made a world of difference I no longer need to get up in the middle of the night to nebulize and I can go from 8Pm to 8AM with a good nights sleep I do use 2 liters of 02 at night but I feel blessed to not have the debilitating symtoms yet and I am very pro active in my routines of treatment Thank you and Deep Breaths to one and all

  • Jenn Patel
    1 year ago

    Wow HOPS, congratulations on 3 years smoke free!!! That is FANTASTIC and, as you know, one of THE best things you could do for yourself. We are so happy for you! Thank you so much for sharing your experience.

    Best,
    Jenn (COPD.net Team)

  • JSmith
    1 year ago

    Interesting article but I still don’t see any recommendations on dealing with the rib cramping.

  • Susanmarie
    11 months ago

    When I have rib cramping I do pused lip breathing, it does help to ease it, however my gp imformed me that it was costicondritis and to take pain relief that was safe for me to use with my other meds.

  • Leon Lebowitz, BA, RRT moderator
    11 months ago

    Thanks for the update, Susanmarie. Glad to hear your physician was able to guide you appropriately with a more accurate diagnosis.
    All the best,
    Leon (site moderator)

  • Leon Lebowitz, BA, RRT moderator
    1 year ago

    Hi again, JSmith. Here is the link to our Facebook page where discussions are ongoing based on the article (above): https://www.facebook.com/pg/COPDDotNet/posts/?ref=page_internal
    Warmly,
    Leon (site moderator)

  • Leon Lebowitz, BA, RRT moderator
    1 year ago

    Hi Jsmith and thanks for your inquiry. I see that Jenn has provided you with a response and hope you will take up some of your inquiry with your health care provider. However, in view of your concerns with rib cramping, I thought you might find it helpful to look over this material on that very subject: https://copd.net/living/community-feedback-rib-cramping/. In addition, you may want to check out our Facebook page here: https://www.facebook.com/COPDDotNet/. There you will find a variety of discussions about topics related to COPD. There have been topics focused on rib cramping. I’m sure if you bring it up again, you will see a lot of interaction.
    All the best,
    Leon (site moderator)

  • Jenn Patel
    1 year ago

    Hi JSmith,

    Thanks for your note! You are correct, it’s more like stats of what people report experiencing with rib cramping. While we cannot give medical advice via the internet (for people’s safety) we do encourage people to speak with their doctor or specialist about this if they haven’t already – AND we encourage discussion between community members! Are there any tactics you’ve tried that help you? Perhaps other community members will chime in as well.

    Thanks again for you post.

    Best,
    Jenn (COPD.net Team)

  • kat27406
    2 years ago

    Interesting. I was diagnosed in 1989 shortly after a corrosive chemical exposure and years of smoking. I’ve been very fortunate to have had great doctors. I watched both my parents die of this dreadful disease. At 70 now I do want to travel. It’s good to hear from others how they manage.

  • Casey Hribar moderator
    2 years ago

    Very interesting, Kat27406! I’m glad to hear you’ve had great doctors, however, I’m so sorry to hear about your parents. Please know we’re here for you. You’re certainly not alone in this. I’m glad to hear that you want to travel, and are learning from other community members! How awesome! Please keep us updated! -Casey, COPD.net Team

  • Janet Plank
    2 years ago

    Very interesting statistics. We can learn so much from these. This will be great for discussions and to share with family. Also, interesting to take in to the doctor on my next visit, if there is time. Janet: Moderator

  • Fred B
    11 months ago

    Im not sure whether I have cramps or not but I sure know that when I am feeling really uncomfortable in the chest area if I LAY DOWN WITH A HEATING PAD ON MY CHEST and it sure helps. It seems to relax my chest muscles. I discovered this by just trying it and it works for me. I also have chronic anxiety, depression, alcoholism and post traumatic stress disorder. I seem to spend more time in my head than in my real life. I am getting all the help I can to learn to live with all of the above so I guess it could be worse. Sometimes I find it hard to see just how blessed I am all things considered.

  • Leon Lebowitz, BA, RRT moderator
    11 months ago

    Thanks for your post Fred B – it sounds like you certainly have your share of maladies to deal with. From what you write – you do sound like you’re handling all you can, the best you can. I’m glad you found something that works for your cramping. Keep up the good work!
    Leon (site moderator)

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