November is Alpha-1 Awareness Month...Alpha-1 occurs when there is a lack of protein in the blood called Alpha-1 Antitrypsin or AAT (produced in the liver).... By Jackie English2 min readBookmark for laterReactions 0 reactions Comments0 comments
If I Have COPD, Should I Be Tested to See if it’s Genetic (Alpha-1)?...The Alpha-1 Foundation website also has pamphlets that you can give to your doctors if they are not familiar with Alpha-1.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments12 comments
Alpha 1 gene and COPD...She had me tested for the Alpha 1 gene and the test indicated that I have the Alpha 1 gene....Reactions 0 reactions Comments8 repliesBreathing
Recognizing Rare Diseases...Alpha 1 Antitrypsin Deficiency (Alpha-1) is a genetic (inherited) condition – it is passed from parents to their children through their genes.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments21 comments
Diagnosed With Alpha-1, Now What? (Part 1 of 3)...I was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) almost eleven years ago.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments0 comments
Do You Belong to an In-Person Support Group?...We have had some of the top Alpha-1 specialists speak, and most importantly, we have had some Alpha-1 support group members speak themselves, and share... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments0 comments
I Have Alpha What?...Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic (inherited) condition – it is passed from parents to their children through their genes.... By Jackie English2 min readBookmark for laterReactions 0 reactions Comments0 comments
What Does it Mean if I Am an Alpha-1 Carrier ?...Most Alpha-1 doctors say that Alpha-1 carriers have only a slight risk of developing a disease due to Alpha-1.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments4 comments
Reflecting on My COPD Journey...Here is a little about my Alpha-1 journey.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments7 comments
Social Media Groups and Friends...It was to raise awareness for Alpha 1 and raise funds for Alpha 1 patients.... By Jackie English2 min readBookmark for laterReactions 0 reactions Comments0 comments
COPD and Liver Disease - Could One Be Causing the Other?...The reason that having Alpha-1 affects the lungs and liver is that my body doesn’t produce enough Alpha-1 protein to protect my lungs, and the little bit... By Jackie English2 min readBookmark for laterReactions 0 reactions Comments0 comments
Diagnosed With Alpha-1, Now What? (Part 2 of 3)...With the help of an Alpha friend and family members, we officially started our nonprofit called Open Arms For Alpha in 2016.... By Jackie English2 min readBookmark for laterReactions 0 reactions Comments0 comments
What Is Alpha-1 Antitrypsin Deficiency?...The ZZ genotype causes low levels of alpha-1 to be secreted by the liver. This causes an abnormal alpha-1 antitrypsin to remain in the liver.... By John Bottrell, RRT3 min readBookmark for laterReactions 0 reactions Comments9 comments
What do you think caused your COPD?...Smoking, your career, the alpha-1 antitrypsin deficiency... what do you think contributed to your diagnosis?...Reactions 0 reactions Comments90 replies
My Experience With an Alpha-1 Liver Study...Most of you have heard of Alpha-1 Antitrypsin Deficiency (Alpha-1). November is Alpha-1 Awareness Month.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments0 comments
Affording Our Medications...Here is a list of more commonly used COPD and alpha-1 meds on GoodRX.... By Jackie English2 min readBookmark for laterReactions 0 reactions Comments7 comments
Where Are Our Celebrity Advocates?...as well as about life with Alpha-1.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments12 comments
Rare Disease Day: What Does It Have To Do With COPD?...This would be Alpha-1 Antitrypsin Deficiency (Alpha-1). Alpha-1 is a genetic condition.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments0 comments
Attending Alpha-1 Education Day...For more info about Alpha-1, go to The Alpha 1 Foundation website, or ask questions in our forums.... By Jackie English2 min readBookmark for laterReactions 0 reactions Comments5 comments
COPD Awareness Month: COPD Struggles...With me having Alpha-1, I don’t see just a lung specialist but also a liver one, with Alpha-1 being a liver disease that can cause lung and liver... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments0 comments
